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Advance Care Planning

 

One of the greatest gifts you can give your family is to provide guidance on the treatments you would – and would not – want to receive if you were unable to speak for yourself. This is called advance care planning.

Sharing this information with your family and loved ones will provide them with peace of mind, while also assuring that your wishes will be honored.

Advance care planning is for anyone over the age of 18, because at any age a medical crisis or trauma could leave you unable to make your own healthcare decisions.

Think about what you want.

Consider how you wish to be treated if you become critically ill or are seriously injured in an accident and can no longer speak for yourself:

What do I want those I love to know?
How do I want people to treat me?
Who is the person I want to make care decisions for me when I can’t?
What kinds of life-sustaining medical treatments do I want — or don’t want?
What does “quality of life” mean to me?

Think about what gives your life meaning. Who we are, what we believe and what we value are shaped by our experiences. Reflecting on your experiences will help you decide what is important to you.

Write it down.

The goal of documenting your advance care planning is to allow you to live in a way that’s most important to you.

JourneyCare provides a free tool called “Five Wishes” for residents in the 10 Illinois counties served by our agency.

Five Wishes is an easy-to-use legal document that is valid in Illinois and most other states, and is written in everyday language that lets adults plan how they want to be cared for in case they become seriously ill.

Five Wishes speaks to a person’s holistic needs: medical, personal, emotional and spiritual. Click here to obtain a complimentary electronic copy of Five Wishes.

To receive a hard copy of Five Wishes, please send an e-mail request to learn@journeycare.org . In the subject line, please specify “Five Wishes Request.”

Share with others.

It’s very important to share your wishes with loved ones. If you can no longer speak for yourself, your health agent — who you will identify in your advance directive — will be asked to make these decisions on your behalf. The more guidance you can provide, the easier it will be for your health agent to carry out.

Other Ways to Express Your Wishes

The following are other legal healthcare documents recognized in Illinois that allow you to express your healthcare wishes.  

  • Practitioner Orders for Life-Sustaining Treatment – (Illinois POLST)
    This medical order is completed with a healthcare practitioner, and is designed to ensure that seriously ill or frail individuals can choose treatments they want or do not want at end of life. This form is not recommended for healthy individuals. A POLST form must be signed by a practitioner if a person would not want paramedics to perform CPR. Without this form, paramedics are required by law to try and keep someone alive.
  • Health Care Power of Attorney – (Illinois HCPOA)
    This form is similar to the Five Wishes document. It is a legal form that allows you to choose a “health care agent.” The agent is the person you trust to make health care decisions for you if you are unable to do so. It’s very important to select someone who would be willing to follow your wishes, can make decisions in difficult times, and be your advocate.
  • Living Will
    This document allows you to document if you do not want procedures that will delay or prolong your death if you have a terminal illness. This form is limiting in that it is only applicable if you have a terminal condition. If you do have this form, it is encouraged that you also complete a Five Wishes or Illinois HCPOA form identifying a health agent.

If you have not completed an advance directive, decisions regarding your health care may be made by someone else (and it may not be the person you would have chosen). Your advance directive will only go into effect when you are no longer able to make decisions yourself.

For more information, please contact Rachael Telleen, at rtelleen@journeycare.org or (312) 912-2678.

 

Advance Care Advocate Bob Lee, a longtime JourneyCare supporter, was an early advocate of advance care directives. Learn more about Bob here.

Other Resourses

Illinois Department of Public Health – information on advance directives available in Illinois.

The Conversation Project – dedicated to helping people talk about their wishes for end-of-life care.

National Healthcare Decisions Day – a nationwide initiative that aims to help people across the U.S. understand the value of advance healthcare planning.

Ride for 3 Reasons – 18-year-old Jan Gierlach is riding his bike from San Diego to St. Augustine, Florida, raising funds and awareness for cancer, ALS and hospice.